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Sunday, 22 April 2018

Misleading website health claims - anyone can send a cease and desist letter


    Photo credit: aitoff on Pixabay (CC0-licence)

I have discovered something which I think I really should have known about, and which has astounded me.

Anyone can send a Cease and Desist letter to a trader who is making misleading claims. For me this would largely relate to misleading health claims, as that's my area of interest, but it would apply to anyone. This would seem to be of particular interest to scientists, doctors, skeptic activist / bloggers and so on.

My recommendation is to proceed very cautiously and politely though :)

The letter itself has no legal weight on its own, the trader doesn't have to respond. However it may be in their interests to do so.

If you subsequently report them to Trading Standards your ignored letter (keep a copy) is potential evidence against them, for persisting in being misleading after you had pointed out the problem.

My surprise discovery happened while reading this paper "Testing the Effectiveness of Consumer Legislation for Health-Related Claims" from HealthWatch. The paper follows the path of a series of complaints made to the UK's (National) Trading Standards about websites' health claims for which there's no (or unlikely to be) robust evidence. HealthWatch's web page accompanying the paper puts things into context:
  • Pursuing a complaint is cumbersome and lengthy
  • Most complaints do not result in enforcement
  • Approaches to enforcement vary widely between trading standards offices
The paper reports on the actions of several volunteers who followed a protocol for asking traders for evidence and, if none forthcoming (or not of suitable, robust quality) a cease and desist letter was sent before the complaint was escalated to Trading Standards.
"Volunteers asked traders to provide evidence for their claims. None did, but three removed their claims from their websites. Volunteers then sent the remaining traders a 'cease and desist' letter, warning them that failing to comply would trigger a complaint to the authorities. One further trader removed claims at this stage." [from page 3 of the 54 page PDF].   The template for the Cease and Desist letter is on page 50.
    Regrettably Trading Standards was only able to investigate a handful of cases (they are understretched) which highlights the importance of bloggers writing about misleading claims in an attempt to stem the flow of nonsense on the web by providing better information.

    Even before you get to that point it's not always obvious who you should be complaining to about a misleading health claim. In its March 2018 report, the Westminster Commission on Autism found that it was difficult and confusing for people to report misleading and harmful 'cures' for autism§ to the relevant authorities.

    Their report recommended that the relevant regulatory bodies (Advertising Standards Authority (ASA), Trading Standards, Food Standards Agency, Medicines & Healthcare products Regulatory Authority (MHRA)) etc could help by determining who has responsibility for what - this is not always clear in the case of food products (Food Stds Agency remit) which are sold with medical claims (MHRA or Trading Stds remit).
    "It is currently far too difficult to determine which agency is responsible for the regulation of the manufacture, promotion, distribution, sale and use of harmful physical, medicinal, psychological or social interventions for autism. Establishing the remit of each agency listed on page 3, identifying potential gaps between them and suggesting possible ways to close the gaps is highly complex. The Commission recommends that the Government urgently convenes the agencies listed alongside others to thoroughly consider the current gaps and look for solutions.

    The agencies must produce a publicly available flowchart of their remit and establish a single reporting mechanism for any concern. The Government should reassess the appropriate remit of each organisation and assess the benefits and drawbacks of legislation similar to the Cancer Act 1939." [page 5 of the Westminster Commission on Autism's report, 'A Spectrum of Harmful Interventions for Autism: a short report']
    Previously I have blogged about how I would like to be able to have a quiet word with people selling quackery instead of reporting them to the Advertising Standards Authority or Trading Standards, in the hope that they make amendments without 'getting into trouble' and saving everyone time.

    Giving people the opportunity to remove their misleading claims without reporting them to any authority seems a friendly way to proceed. However, from experience such attempts have not been well received (or are just ignored). It's a bit fraught - I don't think there's any way of broaching the subject with a trader that doesn't come across a bit threateningly (how could it not, given that the subtext must always be 'if you don't amend this, I will report your site to the regulatory body').

    For that reason my preference is probably just to continue reporting misleading claims directly, however if you want to give traders the opportunity to amend claims without involving authorities (until you have to, because they've ignored you) then here's a recommended sequence of events to follow, or 'flowchart'. This assumes you're fairly confident in assessing health evidence.

    1. Ask for (robust) evidence (this would not include testimonials) and give them a reasonable time to respond ('please reply by X').
    2. If no response, or if evidence is poor, send a polite cease and desist letter - keep copies.
    3. If nothing happens you can report them to Trading Standards and the letter may be used as evidence.

    Note that the authors and volunteers involved in the HealthWatch paper were acting following legal advice - I am not a lawyer and while a cease and desist letter is unlikely to be a legal document on its own I recommend conducting this sort of business super-professionally. Remember you are probably dealing with someone who genuinely believes in their 'treatment' and may be terrified by receiving what looks like an official document. While they are misleading people, and may potentially cause harm, don't be unkind in your dealing with them.

    With thanks to @Majikthyse for additional help :)

    §Further reading
    A number of skeptics' complaints to the Society of Homeopaths over concerns that their members were touting CEASE therapy for children with autism apparently fell on deaf ears (the SoH were very polite when I contacted them, however no changes to the problematic websites were made). These complaints were then escalated to the Professional Standards Authority (PSA) which accredits the SoH's register of homeopaths, and the PSA has taken action. They have re-accredited the SoH (review panel decision) but with a number of provisos, effectively putting the Society of Homeopaths into 'special measures' - maintenance of their accreditation is dependent on fulfilling certain criteria. This is encouraging as it  shows that skeptic complaints can be very effective in getting regulatory bodies to act.




    Thursday, 19 April 2018

    Open air cinema screenings in London 2018

    Every year I publish the known (to me) listing of all open air cinema screenings taking place in London, and I've been doing this since 2010. Let me know of ones I've missed @JoBrodie.

    First, some advice on what to bring with you.

    Tickets! Make sure you print in advance, or have the e-ticket visible on your device - and make sure you know where the venue actually is (!)
    Something warm to wear (even if it's boiling hot in the day it can be surprisingly cool when sitting outside at 10pm)
    Something to sit on (plastic bag as a minimum, blanket or cushion better) as you could be sitting on damp grass or hard stone / concrete or pavement
    - Pop Up Screens let you bring camping chairs but many other venues don't (some venues already have seating) - check
    • Something to avoid rain (umbrellas are generally a bit of a no-no, I'd recommend rain hat or one of those 'pac a mac' things)
    • Something to eat and drink and something to eat it off / drink it out of (most films are in public spaces so you can bring your own picnic, check though as venues like Syon Park and Alexandra Palace might not, always check the website's FAQ) - don't forget a bottle opener if you need one
    • A plastic bag to take away rubbish / and for sitting on grass
    • Loo roll (public toilets being as they are...)

    Table below last updated Monday 7 May 2018 at 1.30am. 

    27 Apr FriCall Me By Your NameEast End Film FestivalOld Spitalfields Marketnr Shoreditch
    28 Apr SatWizard of OzEast End Film FestivalOld Spitalfields Marketnr Shoreditch
    3 May ThuLady Bird Rooftop Film ClubBussey BuildingPeckham
    3 May ThuDirty DancingRooftop Film ClubRoof EastStratford
    4 May FriJumanji: Welcome to the JungleRooftop Film ClubRoof EastStratford
    4 May FriSingNew Cross & Deptford FFFPepys ParkDeptford / Bermondsey
    4 May FriStar Wars Episode VIII: The Last JediRooftop Film ClubBussey BuildingPeckham
    5 May SatPirates of the Caribbean: the Curse of the Black PearlNew Cross & Deptford FFFFolkestone GardensDeptford / Bermondsey
    5 May SatCluelessRooftop Film ClubRoof EastStratford
    5 May SatBlack PantherRooftop Film ClubBussey BuildingPeckham
    5 May SatIn BrugesNew Cross & Deptford FFFDog and Bell PubDeptford
    6 May SunBigRooftop Film ClubRoof EastStratford
    6 May SunFear and Loathing in Las VegasRooftop Film ClubQueen of HoxtonShoreditch
    7 May MonThe HangoverRooftop Film ClubQueen of HoxtonShoreditch
    8 May TueItRooftop Film ClubRoof EastStratford
    8 May TueBeastRooftop Film ClubBussey BuildingPeckham
    8 May TueCon AirRooftop Film ClubQueen of HoxtonShoreditch
    9 May WedCasablancaRooftop Film ClubRoof EastStratford
    9 May WedRaiders of the Lost ArkRooftop Film ClubBussey BuildingPeckham
    9 May WedBlade Runner 2049Rooftop Film ClubQueen of HoxtonShoreditch
    10 May ThuMoulin Rouge!Rooftop Film ClubRoof EastStratford
    10 May ThuYou Were Never Really HereRooftop Film ClubBussey BuildingPeckham
    11 May FriBlack PantherRooftop Film ClubRoof EastStratford
    11 May FriThe Shape of WaterRooftop Film ClubBussey BuildingPeckham
    11 May FriBelleville RendezvousHerne Hill Free Film FestivalHerne Hill VelodromeHerne Hill
    12 May SatThor: RagnarokRooftop Film ClubRoof EastStratford
    12 May SatCall Me By Your NameRooftop Film ClubBussey BuildingPeckham
    13 May SunBaby DriverRooftop Film ClubRoof EastStratford
    13 May SunTop GunRooftop Film ClubQueen of HoxtonShoreditch
    13 May SunLittle Shop of HorrorsHerne Hill Free Film FestivalBrockwell Park Community GreenhousesHerne Hill
    14 May MonGhostbusters (1984)Rooftop Film ClubQueen of HoxtonShoreditch
    15 May TueGreaseRooftop Film ClubBussey BuildingPeckham
    15 May TueTrue RomanceRooftop Film ClubRoof EastStratford
    15 May TueRequiem for a DreamRooftop Film ClubQueen of HoxtonShoreditch
    16 May WedDarkest HourRooftop Film ClubBussey BuildingPeckham
    16 May WedThe Greatest ShowmanRooftop Film ClubRoof EastStratford
    16 May WedThe Death of StalinRooftop Film ClubQueen of HoxtonShoreditch
    19 May SatThe Wedding SingerRooftop Film ClubBussey BuildingPeckham
    17 May ThuBlack PantherRooftop Film ClubBussey BuildingPeckham
    18 May FriAkira: 30th anniversaryRooftop Film ClubRoof EastStratford
    18 May FriThree Billboards Outside Ebbing, MissouriRooftop Film ClubBussey BuildingPeckham
    19 May SatBridesmaidsRooftop Film ClubRoof EastStratford
    19 May SatTop GunLuna CinemaRAF MuseumColindale
    19 May Sat Get OutHerne Hill Free Film FestivalBrockwell LidoHerne Hill
    20 May SunMy Best Friend's WeddingRooftop Film ClubRoof EastStratford
    20 May SunThe Princess BrideRooftop Film ClubQueen of HoxtonShoreditch
    20 May SunThe DambustersLuna CinemaRAF MuseumColindale
    21 May MonLa La LandRooftop Film ClubQueen of HoxtonShoreditch
    22 May TueBack to the FutureRooftop Film ClubRoof EastStratford
    22 May TueBlade Runner: The Final Cut (1982)Rooftop Film ClubBussey BuildingPeckham
    22 May TueThe Big LebowskiRooftop Film ClubQueen of HoxtonShoreditch
    22 May TueThree Billboards Outside Ebbing, MissouriLuna CinemaVictoria Embankment Gardens
    Embankment / Charing Cross
    23 May WedBreakfast at Tiffany'sRooftop Film ClubRoof EastStratford
    23 May WedKingsman: The Golden CircleRooftop Film ClubQueen of HoxtonShoreditch
    23 May WedBlade Runner 2049Rooftop Film ClubBussey BuildingPeckham
    23 May WedThe GooniesLuna CinemaVictoria Embankment Gardens
    Embankment / Charing Cross
    24 May Thu10 Things I Hate About YouRooftop Film ClubRoof EastStratford
    24 May ThuA Quiet PlaceRooftop Film ClubBussey BuildingPeckham
    24 May ThuJawsLuna CinemaBrockwell LidoHerne Hill
    25 May FriSuffragette + i/view w Dir. Sarah GavronRooftop Film ClubBussey BuildingPeckham
    25 May FriMean GirlsRooftop Film ClubRoof EastStratford
    25 May FriDirty DancingLuna CinemaOsterley Park and HouseHounslow
    25 May FriHarry Potter and The Philosopher's StoneLuna CinemaOsterley Park and HouseHounslow
    25 May FriThree Billboards Outside Ebbing, MissouriHerne Hill Free Film FestivalJudith Kerr Primary SchoolHerne Hill
    26 May SatMurder on the Orient ExpressRooftop Film ClubRoof EastStratford
    26 May SatStar Wars Episode VIII: The Last JediRooftop Film ClubBussey BuildingPeckham
    27 May SunTop GunLuna CinemaOsterley Park and HouseHounslow
    27 May SunInstrument of Change: Street Piano + Live MusicHerne Hill Free Film FestivalStation SquareHerne Hill
    28 May MonSome Like It HotRooftop Film ClubQueen of HoxtonShoreditch
    29 May TueTop GunRooftop Film ClubRoof EastStratford
    29 May TueThe Greatest ShowmanRooftop Film ClubBussey BuildingPeckham
    29 May TueItRooftop Film ClubQueen of HoxtonShoreditch
    30 May WedThe Florida ProjectRooftop Film ClubRoof EastStratford
    30 May WedReady Player OneRooftop Film ClubBussey BuildingPeckham
    30 May WedGood TimeRooftop Film ClubQueen of HoxtonShoreditch
    30 May WedTop GunLuna CinemaDanson HouseBexleyheath
    31 May ThuThe Death of StalinRooftop Film ClubRoof EastStratford
    31 May ThuIsle of DogsRooftop Film ClubBussey BuildingPeckham
    31 May ThuPretty WomanLuna CinemaDanson HouseBexleyheath
    7 Jun ThuDunkirkLuna CinemaMorden Hall ParkMorden
    8 Jun FriMean GirlsLuna CinemaMorden Hall ParkMorden
    9 Jun SatGreaseLuna CinemaMorden Hall ParkMorden
    10 Jun SunGet OutLuna CinemaOne New ChangeSt Paul's
    12 Jun TueSwan LakeBP Big ScreensVarious locations var
    13 Jun WedRomeo + JulietTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    14 Jun ThuThe Shape of WaterTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    15 Jun FriJawsTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    16 Jun SatFour Weddings and a FuneralNomad CinemaPaddington Street GardensMarylebone
    16 Jun SatThe Greatest ShowmanTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    17 Jun SunFerris Bueller's Day OffLuna CinemaOne New ChangeSt Paul's
    19 Jun TueGhostbusters (1984)Time Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    20 Jun WedPretty WomanTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    21 Jun ThuDunkirkLuna CinemaBrockwell LidoHerne Hill
    22 Jun FriThree Billboards Outside Ebbing, MissouriLuna CinemaWimbledon ParkWimbledon
    22 Jun FriLabyrinthTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    23 Jun SatDirty DancingLuna CinemaWimbledon ParkWimbledon
    23 Jun SatBreakfast at Tiffany'sTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    24 Jun SunNotting HillLuna CinemaWimbledon ParkWimbledon
    26 Jun TueLa bohèmeBP Big ScreensVarious locations var
    26 Jun TueGreaseTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    27 Jun WedRomeo + JulietLuna CinemaTooting CommonTooting
    27 Jun WedTop GunTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    28 Jun ThuShaun of the DeadLuna CinemaTooting CommonTooting
    28 Jun ThuDirty DancingTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    29 Jun FriThe Breakfast ClubLuna CinemaCrystal Palace ParkCrystal Palace
    29 Jun FriBaby DriverTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    30 Jun SatThree Billboards Outside Ebbing, MissouriLuna CinemaCrystal Palace ParkCrystal Palace
    30 Jun SatThe Greatest ShowmanTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    1 Jul SunMoulin Rouge!Luna CinemaCrystal Palace ParkCrystal Palace
    3 Jul TueLabyrinthLuna CinemaHorniman MuseumForest Hill
    3 Jul TueBack to the FutureTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    4 Jul WedThe Shape of WaterLuna CinemaHorniman MuseumForest Hill
    4 Jul WedCluelessTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    5 Jul ThuNotting HillTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    6 Jul FriJawsTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    7 Jul SatLove ActuallyTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    9 Jul MonThe Lego MovieBST Hyde ParkHyde ParkHyde Park
    9 Jul MonMatildaBST Hyde ParkHyde ParkHyde Park
    10 Jul TueGreaseBST Hyde ParkHyde ParkHyde Park
    10 Jul TueThe Greatest ShowmanBST Hyde ParkHyde ParkHyde Park
    11 Jul WedBridesmaidsLuna CinemaSwanley ParkSwanley
    11 Jul WedLionBST Hyde ParkHyde ParkHyde Park
    11 Jul WedThe Grand Budapest HotelBST Hyde ParkHyde ParkHyde Park
    11 Jul WedDirty DancingTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    12 Jul ThuGreaseLuna CinemaSwanley ParkSwanley
    12 Jul ThuDon GiovanniBP Big ScreensVarious locations var
    12 Jul ThuBill & Ted's Excellent AdventureBST Hyde ParkHyde ParkHyde Park
    12 Jul ThuFlash GordonBST Hyde ParkHyde ParkHyde Park
    13 Jul FriBlade Runner 2049Luna CinemaGreenwich ParkGreenwich
    13 Jul FriThe Shape of WaterTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    14 Jul SatPretty WomanLuna CinemaGreenwich ParkGreenwich
    14 Jul SatCasablancaTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    15 Jul SunDunkirkLuna CinemaGreenwich ParkGreenwich
    17 Jul TueThree Billboards Outside Ebbing, MissouriLuna CinemaKenwood HouseHighgate
    18 Jul WedGet OutTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    19 Jul ThuMean GirlsTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    20 Jul FriDunkirkTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    21 Jul SatJawsTime Out Movies on the RiverTower Millennium PierTower Bridge / Tower Hill
    31 Jul TueThe Shape of WaterLuna CinemaVictoria Embankment Gardens
    Embankment / Charing Cross
    1 Aug WedThe Italian Job (with full orchestra)Luna CinemaOpera Holland ParkHolland Park
    1 Aug WedJumanji Luna CinemaVictoria Embankment Gardens
    Embankment / Charing Cross
    2 Aug ThuNotting HillLuna CinemaOpera Holland ParkHolland Park
    3 Aug FriMurder on the Orient ExpressLuna CinemaOpera Holland ParkHolland Park
    4 Aug SatThe Greatest ShowmanLuna CinemaHampton Court PalaceHampton Court
    5 Aug SunRomeo + JulietLuna CinemaOne New ChangeSt Paul's
    5 Aug SunThe Shape of WaterLuna CinemaHampton Court PalaceHampton Court
    7 Aug TueRomeo + JulietLuna CinemaKensington PalaceKensington
    8 Aug WedLabyrinthLuna CinemaHall Place, BexleyBexley
    8 Aug WedVictoria and AbdulLuna CinemaKensington PalaceKensington
    9 Aug ThuMoulin Rouge!Luna CinemaHall Place, BexleyBexley
    9 Aug ThuThe Greatest ShowmanLuna CinemaKensington PalaceKensington
    12 Aug SunI, TonyaLuna CinemaOne New ChangeSt Paul's
    14 Aug TueMoulin Rouge!Luna CinemaWestminster AbbeyWestminster
    15 Aug WedTop GunLuna CinemaWestminster AbbeyWestminster
    16 Aug ThuFour Weddings and a FuneralLuna CinemaWestminster AbbeyWestminster
    16 Aug ThuSome Like It HotNomad CinemaFestival GardensSt Paul's Cathedral
    18 Aug SatMoanaNomad CinemaThe Allianz StadiumMill Hill East
    18 Aug SatInvictusNomad CinemaThe Allianz StadiumMill Hill East
    21 Aug TueDarkest HourLuna CinemaVictoria Tower GardensWestminster
    22 Aug WedThe Greatest ShowmanLuna CinemaVictoria Tower GardensWestminster
    23 Aug ThuNotting HillLuna CinemaVictoria Tower GardensWestminster
    26 Aug SunSpice World The MovieLuna Cinema
    Regent's Park Open Air Theatre

    29 Aug WedDunkirkLuna CinemaFulham PalaceFulham
    30 Aug ThuThe Greatest ShowmanLuna CinemaFulham PalaceFulham
    31 Aug FriThree Billboards Outside Ebbing, MissouriLuna CinemaDulwich ParkDulwich
    1 Sep SatThe Greatest ShowmanLuna CinemaDulwich ParkDulwich
    1 Sep SatThe GooniesNomad CinemaQueen's Park
    Queen's Park / West Kilburn
    2 Sep SunThe Greatest ShowmanLuna CinemaRegent's Park Open Air TheatreRegent's Park
    4 Sep TueThe Greatest ShowmanLuna CinemaChiswick House and GardensChiswick
    5 Sep WedCasablancaLuna CinemaChiswick House and GardensChiswick
    5 Sep WedThe Bride of FrankensteinNomad CinemaBrompton CemeteryKensington
    6 Sep ThuPretty WomanLuna CinemaChiswick House and GardensChiswick
    6 Sep ThuRebeccaNomad CinemaBrompton CemeteryKensington
    7 Sep FriJane Eyre (2011)Nomad CinemaBrompton CemeteryKensington
    8 Sep SatThe Shape of WaterNomad CinemaQueen's Park
    Queen's Park / West Kilburn
    9 Sep SunAlienLuna CinemaRegent's Park Open Air TheatreRegent's Park
    13 Sep ThuPan's LabyrinthNomad CinemaHyde Park LidoHyde Park
    14 Sep SatThe Shape of WaterNomad CinemaHyde Park LidoHyde Park
    15 Sep SatThree Billboards Outside Ebbing, MissouriLuna CinemaAlexandra PalaceAlexandra Palace
    16 Sep SunThe Breakfast ClubLuna CinemaAlexandra PalaceAlexandra Palace
    18 Sep TueThree Billboards Outside Ebbing, MissouriLuna CinemaBattersea ParkBattersea
    19 Sep WedBlade Runner 2049Luna CinemaBattersea ParkBattersea
    20 Sep ThuPretty WomanLuna CinemaBattersea ParkBattersea
    26 Sep WedLabyrinthLuna CinemaGeffrye MuseumHoxton
    27 Sep ThuThe Shape of WaterLuna CinemaGeffrye MuseumHoxton
    27 Sep ThuThe Shape of WaterLuna CinemaBrockwell LidoHerne Hill
    5 Oct FriHarry Potter and The Philosopher's StoneLuna CinemaHampton Court PalaceHampton Court
    6 Oct SatMoulin Rouge!Luna CinemaHampton Court PalaceHampton Court

    -->
    I also wanted to try it as an embed from the Google Sheet into Blogger (see Mike Rich's comment on getting the height bit to work) but it's not very successful.

    The volume of screenings has increased considerably over the last few years (no complaints there) so it's easier to be able to add new screenings at the end and re-order the list.