Every day I answer scientific / evidence-requiring questions from people with diabetes. I've done this for seven years, along with other colleagues in the Library and Information team (nee Science Information team). We have a huge 'database' of answered questions which we can draw on and update for newer similar queries.
In 2011 I'm hoping to find some way of getting some of these questions and answers 'on the web' so that others can search for them, read them and, ideally, comment on them. This may not be possible or feasible, for a variety of reasons.
I/We'd have to take time to pick out some suitable ones and make sure they're up to date before uploading them. How will we manage any follow-up enquiries that might arise from these questions and answers having been made public - assuming anyone reads them of course, but if they do, they may well have a related query of their own. How do you organise and index the information? Can people browse for all questions, is there an alphabetic listing or do people access the information via keyword search, and is the 'database' open to Google?
What about the risks of putting information on the web that can quickly become out of date? The team I'm in doesn't just answer questions, we do other things too (we provide statistical information to the rest of the organisation and train colleagues in the use of our intranet), and while we'd love to be able to have the resources to answer everyone's questions, we simply don't.
So... have you tackled something similar, and how? I'm wondering if other medical research charities (a) provide a direct or indirect enquiry service and (b) make the results available to the public? What problems might arise and how are these dealt with or pre-empted?
Note: I'm not talking about our main
Careline service where people can chat with trained counsellors about anything that's worrying them about their diabetes or its care (we'll help our colleagues in Careline to answer some of the more sciencey queries, but theirs is a separate direct-to-public enquiry service).
Further background information
We don't currently have the resources to have a full-scale direct public enquiry service in our team, but queries that come in to any of our colleagues that require scientific / medical explanation or a search for evidence can be passed on to us to have a look at.
Over the years the enquiry numbers have dropped, probably because the internet makes it much easier for people to find information for themselves, and I expect this trend is common to many information services. I do wonder if people are getting really good information if they're not getting it from us (not to blow our trumpets or anything, but I think we're pretty good at finding things out and explaining it clearly), but critical appraisal of information found on the internet is a whole other blog post.
We reply either directly to the enquirer or to the colleague who originally took the enquiry. We keep our responses and refer to them for similar queries, but beyond that we don't make this content public, it's just one-to-one sharing.
I used to enjoy learning from the old
NLH Q&A (ee also
Wikipedia's mini article) which was similar in concept to our query service, but NLH's was for clinical questions from GPs. This was a large searchable database of enquiries which were speedily answered using the best available evidence - a good quality rapid response, but not a systematic complete answer (because the aim was to respond in a day or two). The questions were from real doctors asking about real patients.
Questions were not
routinely updated and carried a warning to that effect highlighting that more up to date evidence might be available, but the information contained within the response was very helpful in signposting to further information. For example, if a reference is cited in a document written in 2007 the first thing you can do is have a look at more recently written literature which has cited that reference. Or, if NICE guidance was published in 2006 you can take an intelligent guess as to where you might go to see if it's been updated.
This wonderful service was run by Jon Brassey behind the equally fab
TRIP database which makes all / most of these enquiries available and searchable by Google. If you work in the area of health communication you've probably already come across this database, which in addition to questions and answers links to a number (OK, loads) of documents which have been evaluated for their evidence quality.
Our query service isn't for medical questions from patients or GPs etc - we're not medically trained nor medical librarians but we can certainly signpost to other sources of information.
Apart from the potential problems with getting this information onto the searchable web, there are lots of great reasons to do it - and why I'm so keen. But I don't think it's sufficient merely just to dump a bunch of stuff on the web and leave it.
I suspect that the sheer range of enquiries that we have answered over the years probably exceeds the range of queries that any one individual would likely have, or come across. It would seem to be a helpful thing to make the info more widely available. I want people to be able to find information to questions that they didn't even know to look for.
Making Qs and As avaialable could increase the chance that someone with an even better response can contribute and improve the overall information. This might come from someone who has diabetes who can share their experience of something, but equally it could come from a doctor or pharmacist who might tell us about an information source that we hadn't known about. I can vividly remember the pivotal moment when I learned about the
electronic Medicines Compendium (eMC) which lists every patient information leaflet inserted into the packet of medicine, as well as the much more detailed summary of product characteristics which was very useful for us. Similarly, finding out about the
registers of
clinical trials.
I shall add more of my thoughts here later, but a good film's just come on...
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