Stuff that occurs to me

All of my 'how to' posts are tagged here. The most popular posts are about blocking and private accounts on Twitter, also the science communication jobs list. None of the science or medical information I might post to this blog should be taken as medical advice (I'm not medically trained).

Think of this blog as a sort of nursery for my half-baked ideas hence 'stuff that occurs to me'.

Contact: @JoBrodie Email: jo DOT brodie AT gmail DOT com

Science in London: The 2016 scientific society talks in London blog post

Saturday, 7 November 2009

Medical research charities on Twitter

Shortened link for this post is http://is.gd/guZj13
There are lots of charities using Twitter. This is a list of the healthcare / medical research / patient charities that I've found. I originally wrote this in 2009 and have updated it significantly on 31 May 22 December 2011 - I've kept the original text (deleted from this blog post and replaced with what's below) in case I've missed anything.

Can't promise that this list is accurate or complete but if you know a registered AMRC-style health or medical research charity based in the UK (or having a UK branch) which is on Twitter but isn't listed here then let me know @JoBrodie

(I know some charities have multiple accounts but I'm really after the main 'official' one)

Inclusion criteria

  • UK charity or global charity with UK chapter which tweets
  • funds medical research and / or provides health advice to patients (ie medical research charity and / or patient group


AMRC charities


Action Medical Research http://www.action.org.uk/
@actionmedres
@amr_events

Action on Hearing Loss (formerly RNID)
@actiononhearing

Alcohol Education and Research Council, The http://www.aerc.org.uk/

Alzheimer’s Research UK http://www.alzheimersresearchuk.org
@ARUKnews

Association for International Cancer Research http://www.aicr.org.uk
@AICR

Association for Spina Bifida and Hydrocephalus http://www.asbah.org

Ataxia-Telangiectasia Society http://www.atsociety.org.uk

Bardhan Research and Education Trust of Rotherham No website
Blackie Foundation Trust, The http://www.blackieft.org/
Blond McIndoe Research Foundation, The http://www.blondmcindoe.com/index.shtm
Brain Research Trust http://www.brt.org.uk

Breakthrough Breast Cancer http://breakthrough.org.uk
@BreakthroughBC

British Council for Prevention of Blindness http://www.bcpb.org/

British Heart Foundation http://www.bhf.org.uk/
@TheBHF

British Lung Foundation http://www.lunguk.org/
British Neurological Research Trust, The http://www.ion.ucl.ac.uk/
British Occupational Health Research Foundation http://www.bohrf.org.uk/

British Orthopaedic Association http://www.boa.ac.uk/
@BritOrtAssoc

British Retinitis Pigmentosa Society http://www.brps.org.uk/
British Scoliosis Research Foundation http://www.bsrf.co.uk/
British Sj√∂gren's Syndrome Association http://www.bssa.uk.net/


CFS Research Foundation http://www.cfsrf.com
Chest Heart & Stroke Scotland http://www.chss.org.uk/
Children's Liver Disease Foundation http://www.childliverdisease.org/
Chronic Disease Research Foundation http://www.cdrf.org.uk
Chronic Granulomatous Disorder Research Trust http://www.cgd.org.uk/
Core (The Digestive Disorders Foundation) http://www.corecharity.org.uk/
@CoreCharity
Crohn's in Childhood Research Association http://www.cicra.org/index.asp


Cystic Fibrosis Trusthttp://www.cftrust.org.uk/
@cftrust 
Diabetes Research & Wellness Foundation http://www.drwf.org.uk/

Dunhill Medical Trust http://www.dunhillmedical.org.uk/
EMF Biological Research Trust http://www.emfbrt.org/

Epilepsy Research UK (incorporating Epilepsy Research Foundation and Fund for Epilepsy) http://www.epilepsyresearch.org.uk/

Foundation for Liver Research http://www.liver-research.org.uk/
Foundation for the Study of Infant Deaths http://fsid.org.uk/
Furlong Research Charitable Foundation http://www.frcf.org.uk

Great Ormond Street Hospital Children's Charityhttp://www.gosh.org/
@GreatOrmondSt

Guy's and St Thomas' Charityhttp://www.gsttcharity.org.uk
Huntington's Disease Association http://www.hda.org.uk/
International Spinal Research Trust http://www.spinal-research.org/
Juvenile Diabetes Research Foundation http://www.jdrf.org.uk
@JDRFUK

Kids Kidney Research http://www.kidskidneyresearch.org/
Lister Institute of Preventive Medicine http://www.lister-institute.org.uk
Ludwig Institute for Cancer Research http://www.licr.org

Marie Curie Cancer Care http://www.mariecurie.org.uk/
@maricurieuk

Mason Medical Research Foundation No website
Medical Research Scotland (formally Scottish Hospital Endowments Research Trust) http://www.medicalresearchscotland.org.uk/

Meningitis Research Foundation http://www.meningitis.org
@M_R_F

Meningitis UK (Registered as Spencer Dayman Meningitis UK) http://www.meningitisuk.org/

Motor Neurone Disease Association http://www.mndassociation.org/
@mndresearch
@mndcampaigns

Multiple Sclerosis Society of Great Britain and Northern Ireland http://www.mssociety.org.uk/
@mssocietyuk

Myeloma UK http://www.myeloma.org.uk
I don’t think this is their account http://twitter.com/mmyeloma

National Eye Research Centre http://www.nerc.co.uk
National Osteoporosis Society http://www.nos.org.uk/
Neuro-Disability Research Trust http://www.rhn.org.uk/cat.asp?catid=1891
Neurosciences Research Foundation http://www.neurosciencesresearchfoundation.org.uk

North West Cancer Research Fund http://www.cancerresearchnorthwest.co.uk/
@NWCRF

Northern Ireland Chest, Heart and Stroke Association http://www.nichsa.com/html/index.php
Northern Ireland Leukaemia Research Fund http://www.leukaemia-ni.org
Nuffield Foundation http://www.nuffieldfoundation.org/

PBC Foundation (UK) Ltd, The http://www.pbcfoundation.org.uk/
Pelican Cancer Foundation, The http://www.pelicancancer.org
Pharmacy Practice Research Trust http://www.pprt.org.uk/home/Home.aspx
Primary Immunodeficiency Association http://www.pia.org.uk/

Progressive Supranuclear Palsy Association, The http://www.pspeur.org/
@pspassociation

Prostate Cancer Charity, The http://www.prostate-cancer.org.uk/
@TheProstateCC

RAFT - The Restoration of Appearance and Function Trust http://www.raft.ac.uk
Restore – Burn and Wound Research http://www.restore-research.org.uk/index.htm
Roy Castle Lung Cancer Foundation, The http://www.roycastle.org/

Royal College of Surgeons of England http://www.rcseng.ac.uk
@RCS_SurgeryNews

Samantha Dickson Brain Tumour Trust http://www.braintumourtrust.co.uk/
Sir Jules Thorn Charitable Trust http://www.julesthorntrust.org.uk

Society for Endocrinology http://www.endocrinology.org
@Soc_Endo

South West Thames Kidney Fund http://www.kidneyfund.org.uk/
SPARKS - The Children’s Medical Research Charity http://www.sparks.org.uk/
St Peter's Trust for Kidney, Bladder & Prostate Research http://www.stpeterstrust.org.uk/

Stroke Association, The http://www.stroke.org.uk
@TheStrokeAssoc

Tommy's The Baby Charity http://www.tommys.org/
Tuberous Sclerosis Association http://www.tuberous-sclerosis.org/
Ulster Cancer Foundation http://www.ulstercancer.org

WellChild (Registered as The WellChild Trust) http://www.wellchild.org.uk
@WellChild

Wessex Medical Research http://www.wesmed.org.uk
William Harvey Research Foundation http://www.whrf.org.uk/
World Cancer Research Fund http://www.wcrf-uk.org/

Non-AMRC medical research orgs


Breast Cancer Care http://www.breastcancercare.org.uk/
@BCCare

Coeliac UK
@Coeliac_UK

Leukaemia & Lymphoma Research http://www.beatbloodcancers.org/
@beatbloodcancer

MS Research http://www.ms-research.org.uk/
I don’t know if this is their official account @msresearch

Understanding Animal Research
@animalevidence 

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