Stuff that occurs to me

All of my 'how to' posts are tagged here. The most popular posts are about blocking and private accounts on Twitter, also the science communication jobs list. None of the science or medical information I might post to this blog should be taken as medical advice (I'm not medically trained).

Think of this blog as a sort of nursery for my half-baked ideas hence 'stuff that occurs to me'.

Contact: @JoBrodie Email: jo DOT brodie AT gmail DOT com

Science in London: The 2018/19 scientific society talks in London blog post

Showing posts with label quackery. Show all posts
Showing posts with label quackery. Show all posts

Sunday, 6 December 2020

Genevieve Flight of Shambhallah Healing Centre found guilty at Gloucester Crown Court

Genevieve Flight is or was the director of the Shambhallah Healing Center/Centre and she and her centre made a variety of misleading claims about being able to cure Alzheimer's and Huntington's disease, as well as asthma, cancer and diabetes. 

She maintained that there is no disease that doesn't also have a cure, and she was reported to Trading Standards after she infiltrated a closed cancer patient Facebook group and tried to tout her cures there. This resulted in a court case and a jury at Gloucester Crown Court found her guilty in her absence (apparently she's fled to Nigeria and was tried in absentia) and there is an arrest warrant for her, for her to attend court for sentencing.

"She was convicted of six charges of falsely claiming a product can cure illness, and six of engaging in a misleading practice." (BBC News)

The Shambhallah Healing Centre has previously had two Advertising Standards Authority adjudications upheld against it, in 2018, for similar misleading claims. I had wondered if she might be being prosecuted under the Cancer Act 1939 but it's more to do with misleading practice. 

A transcript of her Trading Standards interview was read out in court (copies are in a couple of papers below, eg Metro) and she suggested that TS send her someone suffering from an ailment and she'd cure them. This was a spectacularly unwise move on her part, removing the misleading claims and agreeing not to repeat them could possibly have averted any further court action.

I wish I'd been in court to hear a medical expert explain that her Brain Tonic couldn't cure Alzheimer's. 

According to the First Gazette notice* (of 1 Dec 2020) on the Companies House website the company will be struck off the register after the accounts were made up for the dormant company in August 2019. From looking at the previous accounts / filings it seems that the company began with £2 and ended with £2. That's two pounds. Not sure I really understand that!

*Note that these Gazette Notices to strike companies off registers can happen for fairly non-sinister reasons - sometimes this is triggered by a default on filing, and may be later reversed, though if the company is dormant this is probably correct in this case.

Further reading
Advertising Standards Authority

ASA Ruling on Shambhallah Healing Center Ltd
(3 January 2018)

- which includes this absolute gem in response to a request from the ASA for info and evidence "Shambhallah Healing Center did not believe that they needed to provide documentary evidence to support their claims because it was their policy that complainants must undergo their treatment in order to declare that it did not work. They invited the ASA to select a candidate to undergo their treatment. They further stated that they had been using these methods to treat patients since the second century BCE.".

ASA Ruling on Shambhallah Healing Center Ltd (2 May 2018)

Courts 'causelist'
Summary of her case T20190281 which began on took place on several dates over 17 October 2019, 11 May 2020 and 3-4 December 2020 concluding on 4 Dec.

News articles
Police issue arrest warrant for 'holistic healer', 43, after she was found guilty of advertising fake 'Brain Tonic' she claimed could cure Alzheimer's, Huntington's disease and cancer (4 December 2020) Daily Mail

Woman who sold bogus ‘brain tonic’ cure is on the run (4 December 2020) Gloucestershire Live

Hunt for ‘holistic healer’ who claimed she had cure for Alzheimer’s and cancer (4 December 2020) Metro

Gloucester 'brain tonic' seller guilty of false claims (4 December 2020) BBC News 

Quedgeley woman claimed she had Alzheimer’s and cancer cure (5 December 2020) Stroud News & Journal

BBC Points West news clips
4 December 2020 - from 3m33s
(clip no longer available)
3 December 2020 - from 17min
(clip no longer available)

Facebook
https://www.facebook.com/genevieve.flight/
https://www.facebook.com/Genevieve-Gold-Flight-151990864838186/
https://www.facebook.com/profile.php?id=100005150956956

Twitter
https://twitter.com/GenevieveFlight
https://twitter.com/shambhallahheal
https://twitter.com/ShebaMoonCups

Instagram
https://www.instagram.com/Genevieveflight/

 



Saturday, 18 May 2019

On the overreach of homeopaths and why homeopathy now finds itself in difficulty



There's a scene in Family Guy where Peter (the dad) asks to see the newspaper (Brian the family dog is reading it) and expresses surprise at the lack of mention of a certain ornithological piece. As Brian starts to ask Peter what he means Stewie (the baby) tries to stop him, but too late, Peter starts singing Surfin' Bird.

I can't help wondering if my poor friends think the same whenever homeopathy is mentioned in my earshot ;)

To most people homeopathy is a harmless pastime, you feel a bit under the weather, you take a pill 'for' it (or 'for' you - it's never entirely clear), you get better. If asked they might ascribe the getting better to the homeopathy and ignore the possibility that they'd have got better anyway. Friends of skeptics probably wonder why we get so exercised about this. Here's why.

If homeopaths and homeopathy stuck to "helping people feel a bit better when they're under the weather" - let's call that Moderate Homeopathy - I'd expect you'd not hear much of a peep from doctors, nurses, vets, scientists, patients, skeptic activists and anyone who's ever given a sideways look at a homeopath opining that they can cure or prevent a serious disease - let's call that Extremist Homeopathy.

As is often the case Extremist Homeopathy flourishes in the vacuum of Moderate Homeopathy's utter failure to call it out. It's incredibly rare to hear a homeopath correct or criticise another homeopath's ideas or pronouncements and I can only think of one example (if you know of others please let me know). Peter Fisher (a doctor and homeopath who sadly died last year in a cycling accident in London) strongly criticised those homeopaths who were claiming that homeoprophylaxis (the preventive wing of homeopathy) could stop people from getting malaria if they took homeopathic vaccinations or pills. It can't. He was pretty cross about them having said this (as part of a BBC undercover operation(1)) because it was a harmful thing to say (people could become very ill) - and of course it did the reputation of homeopathy no favours at all.
"I'm very angry about it because people are going to get malaria - there is absolutely no reason to think that homeopathy works to prevent malaria and you won't find that in any textbook or journal of homeopathy so people will get malaria, people may even die of malaria if they follow this advice." - note, a senior homeopath said that homeopathy could not prevent malaria - it's not just skeptics who said that.
Since 2006 several homeopaths (who would probably consider themselves Moderate) have been sanctioned by the Advertising Standards Authority for making claims that homeopathy can help people with asthma, fertility problems, fibromyalgia, high blood pressure, menopause and so on. Unfortunately this is veering into Extremist Homeopathy territory as homeopathy cannot help with any of these. The quality of evidence is not in homeopathy's favour though no-one should deny that people might feel better after talking with a kindly homeopath who is able (thanks to charging for it) to spend time listening to the person and make them feel supported.

The most-obviously Extremist Homeopaths are now offering homeopathy to treat or prevent autism. The mistaken notion that vaccination can lead to autism has led to a three-pronged approach to try and prevent or reverse this - in short a money-making scam which can leave children unvaccinated or harmed by ridiculous protocols.

1. Tell the parent not to vaccinate the child (or, more accurate, create a culture of fear in which parents become reluctant to vaccinate and provide a 'safe haven' for them to come to you) and offer them homeoprophylaxis - a non-existent homeopathic alternative to vaccination.
2. For parents who have vaccinated and are now worried about future autism, offer them a Homeopathic Detox Therapy package where the imagined bad effects of vaccination can be undone with homeopathy.
3. Where a child has autism, imply that it was caused by vaccination or other 'toxins' and that homeopathy and high-dose supplements ('CEASE therapy') can now detox the child and reverse autism(2). There is no requirement (and no-one even to require it) for these homeopaths to be DBS (formerly CRB) checked and no safeguarding of children.

These types of claims, several made by members of the Society of Homeopaths, have made critics of homeopathy sit up and take particular notice and act on their concerns.

Homeopaths seem to believe that they should be in charge of their own regulation (which is a privilege not a right) but until they collectively stop putting people's health at risk their claims are always going to be closely scrutinised by the same people who've gradually helped to cause the public mood to shift away from seeing homeopathy as being harmless or benign.

Homeopaths will not listen to advice from skeptics but in case this can reach any of them here's my attempt nonetheless at telling homeopaths why they now find themselves in defensive-mode and what I think they need to do:

Homeopathy is its own worst enemy. It has massively overreached in its claims. Doing so means skeptics* have taken notice and acted coherently to try address it. Success has been slow going but is very definitely heading in that direction. The evidence is not in favour of homeopathy so when doctors and pressure groups ask the NHS to defund it they are knocking at an open door. Claiming to cure or prevent diseases while being unable to do so is harmful (directly and indirectly) and until homeopaths have the courage to call out other homeopaths over this you can probably expect greater scrutiny, tighter regulation and more unfavourable news articles.  Any annoyance you feel at skeptics for curtailing your claims and activities is because you've failed to regulate yourselves and you put people at potential risk from active or passive harms.

There was probably a case to be made for homeopathy on the NHS, but homepaths blew it by exploiting its presence on the NHS as a cover for more harmful notions. It is true that doctors are not always able to help patients and some doctors had said they found it useful to be able to refer those patients to what could have been just a harmless distraction (the patient would still be under proper medical care and in little danger from having no real treatment if monitored). Losing them to private homeopaths risks losing that oversight and puts patients at risk from dangerous ideas and bad advice.

If homeopaths had stuck to offering people support without making wild claims I probably wouldn't have written a single blog post or tweet, or written to regulators (I've been in touch with the Advertising Standards Authority, three different Trading Standards branches, Professional Standards Authority in the UK as well as regulators in Ireland and the US). I'd not have signed or shared petitions or lent my voice to calls for homeopathy to be defunded by the NHS (successful) by insurance companies (partially successful) or removed as a first line treatment for vets (successful), and I'd not have welcomed the attitudinal change among newspaper editors and TV producers in several countries which means articles and programmes now actively criticise the dangerous claims made, instead of advertising homeopathy clinics as they used to (still do, but to a lesser extent).

*Not just bloggers like me but doctors, nurses, vets, scientists, angry patients, health activists and skeptic bloggers.

References
(1) Malaria advice 'risks lives' (BBC News) 13 July 2006
(2) Homeopaths ‘treat’ autistic children with rabid dog saliva (The Times) 14 April 2019

See also
How homeopaths push useless alternatives to crucial vaccines (The Times) 4 May 2019

The Times view on homeopathic treatments: Dangerous Quackery (The Times) 4 May 2019
Homeopathic alternatives to the measles vaccine pose a risk to public health



Thursday, 25 April 2019

The Professional Standards Authority has re-accredited the Society of Homeopaths - CEASE therapy for autism

Reaccreditation document (PDF)

This one is a little surprising. A number of us have been expressing concern to the Professional Standards Authority (PSA) about the response by the Society of Homeopaths (SoH) to those of their members who are offering "CEASE" therapy for autism.

The SoH keeps a register of its 997 members (at Sep 2018, all of whom are allowed to use the term RSHom in their marketing material) and the PSA accredits a variety of society registers, including SoH's. SoH therefore runs an Accredited Register (AR) of homeopaths, though accreditation isn't meant to imply that homeopathy works.

Last year the PSA re-accredited the SoH with some provisos that the society would need to satisfy some additional monitoring requirements about those of their members offering CEASE.

Yestesrday the PSA published the latest accreditation and I've not read it all yet but wanted to add something here about it as I've written several times on this topic.

The 21 page PDF from the PSA is here - Society of Homeopaths Annual Review 2018

What surprised me is that the PSA highlighted a problem with members of an AR offering any treatment (whether real or bogus) that claims to treat a protected characteristic such as autism. The SoH still has members offering this, with a range of claims.

Thanks to @UKHomeopathyReg for alerting me.

Also of interest and relevance is that the Advertising Standards Authority (ASA) has referred five homeopaths (I don't know if any of them are SoH members, no reasons to assume that any are) to Trading Standards for further investigation. Last year the ASA sent an Enforcement Notice to 150 UK homeopaths who were making misleading claims to treat or cure autism. Homeopaths should not write CEASE out in full (it stands for Complete Elimination of Autistic Spectrum Expression) as the full name is an implied health claim, which is misleading.

Why so-called CEASE Therapy claims to 'cure' autism really have to stop - Guy Parker, CEO ASA




Friday, 22 March 2019

CEASE Therapy for autism in the UK news today - it doesn't treat or cure autism

1. Listen
The BBC will run a piece* early this afternoon on Radio 4's You and Yours about a bogus treatment for autism, called CEASE Therapy aka 'Complete Elimination of Autistic Spectrum Expression'.

Listen to it on BBC Radio 4 from 12.15pm today Friday 22 March 2019, or catch up later
https://www.bbc.co.uk/programmes/m0003d81

Read You and Yours' post about the story "Advertising watchdog rules fake autism 'cure' adverts must stop" https://www.bbc.co.uk/news/health-47666939


CEASE rests on the false idea that vaccination causes autism and uses homeopathy and supplements to try and "detox" children from the imagined negative effects of the vaccines. Not only is it nonsense it's also harmful and medically neglectful (encourages diarrhoea as a process to eliminate toxins),  a safeguarding concern (vulnerable children and families involved) and offensive (implying that autism should be eliminated). There is no need for it, and it's great that awareness is being raised.

2. Watch
The BBC also referenced CEASE on their Breakfast television show. You can watch it again on iPlayer (you may need to register) until tomorrow (Saturday, at 9.15am), from 19 minutes into the programme (6.18am on the programme itself).
https://www.bbc.co.uk/iplayer/episode/m0003fvb/breakfast-22032019

3. ASA
The Advertising Standards Authority's CEO Guy Parker published a blog post today about the action the ASA has been taking against homeopaths who are offering CEASE therapy and who are referencing it in relation to autism. Last year the ASA sent out an Enforcement Notice to 150 CEASE homeopaths pointing out the problems with offering the therapy, this notice has also been published today. Five homeopaths have been referred to Trading Standards but not yet added to their Referrals page.

Why so-called CEASE Therapy claims to 'cure' autism really have to stop
https://www.asa.org.uk/news/cease-therapy-claims-must-stop.html

Metro have also picked up the story.
Guardian too.

The ASA have previously adjudicated against two practitioners offering CEASE therapy - Teddington Homeopathy
and Elle Fox (trading as Bubbling Life).

4. SoH / PSA
The Society of Homeopaths is one of several membership societies for homeopaths but is the only one regulated by the Professional Standards Authority. SoH members are already required to adhere to ASA's guidelines but last year the PSA had to step in and address problems with some members' claims about CEASE.

The response by the SoH to the ASA's action has been described as "staggeringly inadequate" because there have been "discussions taking place on how the therapy might be renamed" instead of addressing the underlying nonsense. This merely "(e)ncourages CEASE quacks to continue as before, while hiding from ASA." 

Today (and over the weekend) Oxford University's Lady Margaret Hall is hosting the SoH's AGM and conference (on fertility and pregnancy).

5. See also
CEASE Therapy on Wikipedia
• Westminster Autism Commission (PDF) on other harmful interventions on autism (CEASE not included)

*"We report on what's being done to stop a bogus treatment which claims to cure autism in children. The Advertising Standards Authority has told You & Yours it’s served enforcement notices on 150 homeopaths who offer so-called CEASE therapy. The treatment claims to purge heavy metals, vaccines and antibiotics from a child’s system. The National Autistic Society says there's no cure for autism and it's wrong to claim it can be cured. We speak to a mother who tried the treatment for several months and now regrets it. The Society of Homeopaths say there are discussions taking place on how the therapy might be renamed to make claims aren't made that can't then be substantiated."





Wednesday, 2 January 2019

"Rope worms" - new to me, but not to 'science'

Edit: 3 Jan 2019 - I've now created a new 'stub' page on Wikipedia for Rope worms.

I have been reading about ropeworms or rope worms which are in reality parts of the gut lining that have sloughed off and been pooed out. They can be quite large and arise because people are taking fake treatments (such as MMS* bleach enemas) to remove these 'gut parasites' in the hope of curing diseases or conditions (such as autism).

In fact the enemas would appear to be simply creating the rope worms by stripping parts of the gut lining away.

There are two papers that have been published on uploaded to ArXiv which argue that these ropeworms might be a new species of human gut parasite, a notion which has been strongly refuted (and laughed at) by Science Based Medicine and also several people answering a question about rope worms on Quora.

It's absolute nonsense and not an "anaerobic helminth". For an added bonus the 'worms' have also been given the name "funis vermis" in one of the papers. This would be funny if people weren't giving bleach enemas to children with autism with the intention of 'removing' these 'parasites' from the gut. People are awful.

For lots of revolting pictures of gut linings relabelled as worms have a look at this PDF.

*MMS = Miracle Mineral Solution / Supplement aka Master Mineral Solution (aka sodium chlorite, chlorine dioxide solution, aerobic oxygen) is a form of bleach which is sold as a claimed cure-all for all sorts of things, including autism. More info from the UK's Food Standards Agency. As of 2016 MMS is also been banned (by HPRA) for sale in Ireland.




Thursday, 21 December 2017

Why is UCL's School of Pharmacy hosting homeopathy conferences?

The other day I spotted this tweet highlighting that the School of Pharmacy (part of UCL) is to host the Society of Homeopaths' Annual General Meeting (AGM) next April.




Homeopathy seems very much at odds with an academic institution, and particularly one that concerns itself with health and medicine. Obviously the Society of Homeopaths is perfectly entitled to have an AGM but I don't think it's appropriate for it to take place on UCL premises.

UCL did previously cancel a homeopathy event in 2016 that would have taken place at the Institute of Neurology, but after complaints it was moved elsewhere. Apparently it was an erroneous booking and lessons were learned with something put in place to prevent it happening again however it's not clear that those lessons have been shared with other colleges and institutions within UCL.

It looks like UCL's School of Pharmacy also hosted the Homeopathic Medical Association's conference earlier in the year (I missed hearing about this one but here's the conference PDF).


These homeopathy events should go ahead (provided they're legal) but not at universities or similar establishments.





Thursday, 30 November 2017

Homeopathy no longer to be prescribed on the NHS (but not banned)

In haste, quick lunchtime post - please let me know of any errors.

NHS England's Board has agreed today with NHS England's recommendations (following a big consultation) that homeopathy should not be routinely prescribed. It should not be prescribed for new patients and prescriptions already happening should be wound down.

There were several papers and topics under discussion at NHS England's meeting today, the relevant Board Paper discussing homeopathy is Items which should not be routinely prescribed in primary care: findings of consultation and next steps – for decision (see sections 34 to 38 on Homeopathy, also reference made in the next section, on Herbal remedies in section 40).

Note that this is not a ban on homeopathy. NHS England does not have the legal powers to prevent doctors from prescribing anything that is not on the Department of Health's blacklist (I think in practice it is less a ban on prescribing, more an acknowledgement that it will not be reimbursed which is probably effectively the same). However Section 43 of the document linked above specifically proposes that the Secretary of State should add homeopathy, and several other things, to the blacklist. That would involve a separate consultation and then a decision.
Edit 2 Dec: "In October 2015, Good Thinking wrote to the Department of Health to highlight that under all applicable criteria, we could see several reasons why homeopathy should be added to the Blacklist, in line with the Department of Health’s legal obligations. The Department was reluctant to respond positively, but in November 2015, the Department agreed they would hold a consultation, and in July 2017 the Department of Health directed us to NHS England’s consultation as their response to our request.

Michael Marshall, Project Director of the Good Thinking Society, said: “We are very pleased to see these recommendations by NHS England, coming two years after we first raised the issue of blacklisting homeopathy to the Department of Health. It is particularly commendable that NHS England took the additional step of actively recommending to that homeopathy be blacklisted. We will be writing to the Department of Health to urge them to take this recommendation seriously and to take swift action." Source.

 

At the time of writing (2pm, 30 Nov 2017) the British Homeopathic Association (BHA) hasn't include any reference to this news in their latest tweets. However over the last few days they have been successfully raising funds to request a judicial review of the process used by NHS England in this consultation. As I understand this is a two-step process - first permission must be given for the review, second the review must take place.

The previous judicial review (by a member of the public but considered by the Judge to have been steered by the BHA's hand) did not go well.

But it's been a good November for people and piglets - both the Royal College of Veterinary Surgeons (RCVS) and the NHS have come out against homeopathy.

Even if NHS England's decision had gone the other way homeopathy is still in a perilous state on the NHS and prescriptions have been falling over the last 20 years.

Thanks to @fermi239 for the heads up on Twitter earlier today and thanks also to @zeno001 and  @UKHomeopathyReg for further discussion and clarification.

Further reading: this story in the news
As Edzard Ernst noted in July 2017, the tenor of media articles covering NHS funding has generally become much less favourable towards homeopathy, and more favourable (in general) towards a skeptical view of homeopathy than has been seen in previous years. This itself is encouraging - when you want to get something changed it's a lot easier if the prevailing view matches. For a long time it didn't.

NHS tells Jeremy Hunt: Homeopathy on prescription should be 'blacklisted' because they don't work Independent 30 November 2017

Humanists celebrate end of NHS homeopathy prescriptions in England Humanists UK 30 November 2017

NHS England calls for homeopathy to be blacklisted; Enfield CCG ends homeopathy funding Good Thinking Society 30 November 2017

Thank God the NHS has come to its senses over homeopathy Independent 30 November 2017




Tuesday, 21 November 2017

Pointless arguments in the #homeopathy-sphere that you can safely ignore, saved for interest (mine)

Yesterday (20th Nov) I was surprised to be alerted to a 19th Nov post published on homeopathy enthusiast Sandra Hermann-Courtney’s (@BrownBagPantry on Twitter) blog, a screenshot below.



It turned out to be my blog post (from 15th Nov) copied and pasted without attribution but with a disclaimer stating "No restriction to its unedited re-use for informative purposes was declared." For the record no-one needs to write this on their blog posts, as copyright is implied.
The post in question:
Alternative medicine conferences and events - a guide for hotels and conference centres
(15 November 2017)

I asked her, through her commenting system, to take the post down and also pointed out that she could have published it unimpeded if she'd interspersed some commentary to at least make it look as if she’s re-using my content as fair use. It is generally OK to publish a line by line rebuttal, it is not OK to steal the content wholesale and publish without attribution (she did include a link to my post). She subsequently did add in commentary and I left her a note saying thanks and that there’d be no further action from me.

So I was surprised to see that she’s edited the same post (at least) three times today. Once to remove it entirely, including two of my comments, with just a link to my post. Then a second time to add in a couple of paragraphs with further bleating and an accusation that I’d threatened her with a DMCA notice to take down her entire blog. You can see exactly what I sent in the screenshots of my comments below (Sandra regularly edits her content after the fact and we’ve all learned to screenshot things in any dealings with her).

Here's the thrilling timeline... dun dun duuun...

Sandra publishes my entire post (losing the links and the formatting, for shame) without attribution and so I send this comment [she published the comment]

Screenshot 1 - click to enlarge
She later adds attribution and announces that the post is ‘editorial’ (it isn’t) and I send this comment [which she doesn’t publish]

Screenshot 2 - click to enlarge

She finally intersperses some comments, for which I thank her in a third comment explaining that no further action will be taken. It was brief and amiable, she might have published it but I forgot to screenshot.

Here’s the text of her post now, as at 7pm 21 Nov, it's already changed several times since 5pm today… her text is in italics, my comments interspersed between.

"UK homeopaths, homeopathy users, supporters, homeopathic organizations, hotels, universities and other venues that host informational gatherings to inform the public about alternative health care options, need to be aware of the content on the blog of JoBrodie "Stuff that occurs to me."

In the first paragraph Sandra focuses on homeopathy but my blog post is about all forms of quackery. In fact my post is specifically only about misleading advertising for quackery. There are numerous talks and events happening every so often in London about homeopathy and I’ve not complained about any of them for the simple reason that they have not claimed they can cure or prevent any disease.

People who are putting together informational events for the public about alternative health may want to make themselves aware of advertising regulations, medicine regulations and the Cancer Act 1939. Trading Standards has shut down a variety of events that would have likely broken the law if they’d continued. Alternative medical folk may detest skeptics but when we point out that something might be a bit dodgy we might actually be saving you a lot of future grief from authorities.

"
On one blog page, Brodie describes in explicit detail what and how anti homeopathy skeptics do and can stop educational and/or informational presentations at schools, universities and other organizations. She lists resources for more help as well as successes skeptics have had stopping the informational presentation of alternative health care options, primarily homeopathy. This practice by anti homeopathy activists is dangerous to society. It's bullying. It's disgusting. The title of this blog post reflects my fears in this regard." 



Well obviously I think homeopaths and other quacks claiming that they can cure autism or cancer are quite dangerous to society...

"As I interpreted one of Brodie's comments (I deleted them), she threatened to proceed with a DMCA take down notice of my entire blog. I understand how embarrassing this must be to have the skeptics' tactics exposed. Someone has to do it. I did. I will. No regrets."

Sandra has changed this third paragraph several times, this is the current (at 7pm) iteration, two earlier versions are in the tweet below. Edit 22 Nov: she keeps tweaking the post so I've set up an automated change detection to email me when there's been further tinkering ;)



Threatened [to proceed] with a. DMCA take down notice of my entire blog” - well, see what you think from the text in Screenshot 2 above. I think I’ve included it more as a “well I’d rather not, but it’s an available option isn’t it?” rather than a threat per se, but fair enough it was certainly mentioned. However it then becomes clear that Sandra has panicked somewhat due to misunderstanding what a DMCA notice is. I cannot take down her entire blog, I can only ask for Google (who own Blogger) to remove the content for which I have the copyright. Since I don’t own the copyright for any other content on her blog (to be fair, neither does she as it’s mostly screenshots of other people’s tweets, plus bleating) I cannot have any effect there.

A DMCA notice would likely cost me a couple of hundred pounds as I’d go through a lawyer (to avoid handing over my contact details) and it would also expose me to the mockery of fellow skeptics (and probably a bunch of other people too) for using a sledgehammer to crack a nut - so it’s not something I’d rush into with that much enthusiasm.

The final lines of her third paragraph made me laugh out loud though. It reads as if she thinks I wanted her to take down my post because she was exposing the content to a wider audience. The fact that I’d already published the content to my own blog, then tweeted it and had it further RTed rather suggests I wanted it ‘exposed’ to a wider audience. I just didn’t want it stolen and reposted without attribution. Fortunately she seems to have taken it down. For now...

Admittedly I don’t always succeed in getting people to take content about quackery down, the irony of this success is that the content was my own.

I do hope Sandra isn't cross at me lifting her content and adding my commentary, after all I didn't see anything written on her blog post to indicate the contrary, so I'll assume her agreement since "No restriction to its unedited re-use for informative purposes was declared."

25 November: Edit after she changed her post again
"...someone (perhaps a member of the Society of Homeopaths) in London might want to share a link to her blog with meeting room bookers (www.meetingsbooker.com/uk), institutions of higher learning and health care centers in London."

Quite amazing. This is literally what I want to happen. My post is about gathering information that might be of use to people working in hotels, conference centres or any event bookers wherever they work. The 'end product' from the post should be a set of recommended guidelines on how to spot quackery / misleading health claims and why it's a good idea not to let it flourish by making space available for meetings about it. I'd never heard of meetingsbooker before but if this flags up to them the problem of quackery that's great. She seems to think she's 'exposing' the content on my blog, as if me publishing it and sharing it on Twitter / Facebook etc is somehow keeping it secret. Baffling.

"If the like minded anti homeopathy skeptics need help, Brodie has posted links to the blogs and/or websites of the "Good Thinking Society; the Nightingale Collaboration; Sense About Science and then a Skeptics in the Pub (various around the UK)" where you can, well....learn how to combat the spread of homeopathy over a pint or two..... "

Goodness, how can one person misunderstand so much. The listing of the groups isn't for homeopathy skeptics, or any other kind of skeptics, but for event bookers who are faced with an event they're not sure about and would like to ask someone about it. Those are the people they might ask...

Screenshots
22 Nov, around ten to midnight.             








22 Nov, Twenty past midnight...





Wednesday, 15 November 2017

Alternative medicine conferences and events - a guide for hotels and conference centres

tl;dr is it a good idea to produce a checklist for hotel event bookers so that they can avoid hosting out and out quackery? What would go in the checklist?


Edit 30 Jan 2018
I could have saved myself writing the post below if I'd remembered these :) Here are two clear guides on things to think about, and things to watch out for, when considering the suitability of a topic or speaker for an event.
A letter to the TEDx community on TEDx and bad science (3 October 2013)
10 Questions To Distinguish Real From Fake Science (8 November 2012)




Occasionally skeptically-minded people* will learn that a hotel's conference rooms are to be used for a health-related event on a topic that is quackery and which has the potential to be harmful and costly to customers ('patients'). Occasionally such talks take place at universities or on hospital trust grounds too.

Universities and hospitals generally don't want to be associated with quackery, particularly dangerous stuff, and tend to be pretty amenable to cancelling the event or having it moved off-site. That's not always the case with hotels. Many of us would prefer that these events were cancelled completely but as long as the event is legal then there's not much we can do.

Cancer-related alternative health events, however, may be in danger of breaching the Cancer Act 1939 and it may be more appropriate to cancel them. Of course it's entirely possible that someone wants to talk about complementary support for people with cancer with no problematic mentions of stopping their treatment and no advice given about undertaking unevidenced treatments - despite the treatment being quackery it's probably fairly hairmless and I suspect we don't really have much of a valid objection.

This example below though - where a speaker encouraged audience members who had cancer to give up their medication (or avoid taking it in the first place) - that took place at a hotel in Liverpool would seem to be one of the ones that should not have gone ahead. The report, from Michael Marshall of the Good Thinking Society, is a startling read: Cancer ‘Cure’ is Quackers Skeptical Magazine, November 2017, by Michael Marshall

Hotel event bookers might not know that a health-related talk (perhaps badged as a 'wellness' event) is unevidenced quackery or how to tell it apart fom something useful that everyone should know about - and that's where the skeptical-minded community might be able to help.

I wondered if we skeptics might put together a short checklist to help people appraise whether events are likely to cause problems. Does this idea have 'legs' as they say?
Edit 10 January 2018 - one of the topics I wasn't envisaging a university having many problems with, in terms of finding they've unwittingly said yes to room bookings, is conferences by white supremacists on eugenics with a side order of anti-Semitism. Today UCL found itself in this unfortunate position after a story uncovered that such a conference has been hosted at their site for the last four years. UCL has acted quickly to distance themselves from it, suspend future bookings from the staff member involved and are seeking an explanation from them.

For example I might include things like
  • if it mentions cancer at all ask them to assure you (the hotel booker) how they will ensure that the content of the presentation and any responses to questions don't breach the Cancer Act 1939 (Trading Standards can veto these events, or bring criminal proceedings against the speaker - I've never heard of venues being prosecuted though, anyone know?)
  • if it talks about curing or treating (or 'helping with') any health condition beware - this may fall within misleading advertising (overseen by the Advertising Standards Authority in general, anything relating to the use of medicines would fall under the MHRA [Medicines & Healthcare products Regulatory Authority]
  • also be wary of any "that doctors don't want you to know about" hyperbole
  • be aware that skeptically-minded people often attend these events for monitoring purposes, and general interest (there is always new quackery to discover)
  • the possibility of the whole social media backlash thing, though I think hotels can probably weather that!
  • the very real possibility of doing harm to members of the public either by them paying out money for a duff event, or a duff treatment (or them failing to follow better treatment advice) - this is not a good look.
  • a list of 'treatment modalities' known to be unevidenced twaddle (eg homeopathy, MMS aka Master Mineral Solution or Miracle Mineral Solution, it goes by other names too)
  • a list of treatments for which the evidence is not very good
  • how the skeptic-minded community can help beforehand 
  • (afterwards is probably a bit late!)
  • links to other 'how to spot quackery' checklists including these red flags, or this rough guide to spotting bad science
*healthcare professionals, scientists, skeptical activists, concerned members of the public etc
Skepticism-based clearing houses
Any of these organisations would possibly be able to field, or forward on, enquiries from hotels or other event-conference-centres about potentially problematic health events.
Obviously if your organisation is listed above and you're thinking "hang on, we don't really have the capacity for that!" I can remove you (or amend the listing to clarify the way you might like to be involved, if at all).
  • Are there any good skeptic-monitored hashtags? (Beyond #homeopathy and #Burzynski?).
  • Do we have examples of successes (from our point of view) where an event has been cancelled or moved?

Example of events not yet cancelled or moved





Examples of events being cancelled or moved
Manchester United cancel David Icke show at Old Trafford after backlash (17 November 2017)  The Guardian - the cancellation possibly more to do with alleged antisemitic remarks than quackery per se but an interesting example of social media backlash causing a venue to investigate further.

Homeopathic College Pays Heavy Price for Helping to Screen VAXXED (17 February 2017) Quackometer blog - in this case the screening of the film 'Vaxxed' was not able to be prevented and it was shown at the Centre for Homeopathic Education within Regent's University in London. When it transpired that the university had not been properly informed of the film's contents they cancelled the contract with the Centre (in reality I think they'd hired a few rooms) rendering them homeless. The film was moved from the Curzon Soho screening after it had been cancelled.

A Cinema In London Has Pulled A Documentary By A Disgraced Anti-Vaccine Activist (January 2017) Buzzfeed - Vaxxed, an anti-vaccination film directed by Andrew Wakefield, was to be screened at Curzon Soho but an outcry from scientists and the public stopped that. The film had previously been removed from the Tribeca Film Festival.

UCL cancels homeopathy event by Indian docs after complaints (2 February 2016) The Wire - see background to this story in Andy Lewis' blog Indian Homeopaths come to UK to Lecture on Treating Cancer (comment: “Event cancelled. Booking made by junior sec unaware of issues. Lessons learnt process set up. New instructions on booking in IoN now in place.”)

Cancelled: Man who claims to have cured cancer will not be speaking in Ireland (16 June 2015) The Journal - one event was scheduled to take place at the Clayton Hotel in Galway but was moved to another hotel, which later cancelled once the organisers learned how controversial the speaker's views were, a second event in Dublin was also cancelled. More info at Cork Skeptics' page (they led the campaign).

The fake cancer cure conference the 'healers' tried to keep secret (25 May 2015) - this event (the 'Spirit of Health Congress 2015') went ahead after having been moved twice. Delegates were told to attend a meeting point where they were given train tickets and further instructions, video footage (not shown in link) was obtained of the event.

A cancer-related event, due to take place in June 2014 in Bristol attracted concern from Trading Standard and the organiser of the event first cancelled it then later moved it to Exeter (9 Mar 2014)
[Event initially cancelled][Move to Exeter]

Totnes cancer conference forced underground by Trading Standards (23 March 2012) Josephine Jones' blog - a cancer event was due to take place in Totnes at the Civic Centre. The local MP supported efforts to get the event moved off council property or ideally cancelled and Trading Standards intervened. The event was initially cancelled but later went ahead at a different venue.

The supramolecular chemistry of the homeopathic remedy (1 October 2010) - amazingly this event was scheduled to take place at the University of Cambridge (!) but people managed to get it cancelled by mid-September.


Other responses to quackery





Sandra Hermann-Courtney's strange behaviour...
The homeopathy enthusiast Sandra Hermann-Courtney (@BrownBagPantry and @OnFluff on Twitter) is not happy at all about my post above. She stole its entire content and republished it on her own blog, with no attribution. After I tried several attempts at getting her to add commentary ('fair use') or remove the post she finally took it down. Then she replaced it with her own post bleating about this one and complaining that I'd threatened her with a DMCA takedown notice. Mmm, not quite but you can enjoy seeing how duplicitious she's been here.

She has form on using people's content without permission and also behaving abominably to someone who lost a child to sepsis (it started badly when she suggested they might have saved the child if they'd tried homeopathy, and somehow managed to get worse). This blog post above isn't 'against' homeopathy per se, it's against misleading promotions or wrong health advice. Non-misleading homeopaths etc are probably perfectly nice people, I've no argument with them :)






Tuesday, 7 November 2017

I've had it up to here with homeopaths marketing CEASE therapy quackery for autism




UK homeopaths are not allowed to make misleading claims about homeopathy (no marketer is allowed to make misleading claims about any product or service). We have a fairly strange situation with the marketing of CEASE therapy in the UK though, which I have written about before, in passing, in October 2016 and July 2015.

CEASE stands for 'Complete Elimination of Autistic Spectrum Expression' - a name that belies its intention despite advertising regulations. As marketers are allowed to write out acronyms in full they are able to strongly (and wrongly) imply that the treatment can help people (typically children) who have autism.

I shan't link to it but there's an official CEASE therapy website which has recently been strongly criticised by the Dutch equivalent of the UK's Advertising Standards Authority (ASA). However that website, not being hosted in the UK, is more able to ignore the ASA's requirements for advertising. Homeopaths around the world who have completed the CEASE training can also have a page about them in the practitioners section of the website.

UK homeopaths can therefore bypass advertising regulations while still obliquely promoting CEASE as a treatment for autism by
(i) avoiding making direct claims about homeopathy, CEASE and autism on their websites (some of them instead say that the ASA forbids them from making certain claims, or that the ASA has told them to remove certain claims etc)
(ii) spell out the acronym CEASE in full
(iii) link to the official CEASE page which is currently free-er to make claims. That is, defer the actual marketing to another site
(iv) leave page visitors to draw the hoped-for conclusion

Basically it's "I can't say anything about this treatment (or I'll get in trouble with the ASA) but go and have a look at this website that can say stuff and then come back here and make an appointment." As an added bonus the sites often talk about detoxing from vaccinations, thereby maintaining the background anxiety that autism and vaccinations are linked in some way (they're not).

I would like to see the term 'CEASE' ceased and no longer used in marketing, also no more linking to the 'cease-therapy' website. Ideally the homeopathy professional societies would sanction their members for implying any treatment was useful for autism.

~oOo~    •••    ~oOo~

Teddington Homeopathy (Melissa Wakeling) has been on the ASA's non-compliant list of online advertisers since August 2015 for failing to make all the required corrections to her marketing of CEASE therapy. She did make a few changes, but the website still makes misleading claims.

Interestingly one of the criticisms in the original adjudication was that Teddington Homeopathy linked to two websites which contained problematic phrases in their URLs (web addresses). Here's what the ASA said -
"The page also contained links to external websites containing "homeopathy-for-autism" and "homeopathy-and-autism-faq" in the visible URLS..."
and
"We welcomed Teddington Homeopathy's decision to remove the testimonial and other material from the page, but considered that the information about Tinus Smits and the URLs still implied a benefit for homeopathy and CEASE therapy for autism, and that the intention of CEASE therapy was to treat autism."
Comparing what the page was like on 23 December 2013 and currently (screenshots below) shows that some changes have indeed been made, though the current version is at pains to imply that they haven't.

Teddington Homeopathy's page on CEASE therapy in 2013 before the ASA made them change it.

Teddington Homeopathy's page on CEASE therapy after amendments were made, in line with ASA's requirements. As not all the amendments have been made yet the site has been listed as a non-compliant online advertiser.

The Society of Homeopaths has noted in their 2016 annual report that CEASE therapy was something that a lof of their members were keen to learn about, as part of their continuing professional development... obviously I'd prefer that they take to task their members who are promoting a non-therapy to vulnerable families.







Tuesday, 4 April 2017

Homeopathy is hardly exactly escaping the NHS 'ban'

It's Homeopathy Awareness Week next week or as we in the snark community have it 'Homeopathy Bewareness Week'. Don't get taken in by their lies ;-)

Actually homeopathy's already been having a pretty interesting week this week.

First, plenty of people noticed its absence in the list of things the NHS is considering not paying for anymore. Second, considerably fewer people noticed that the NHS has kinda already considered this, by paying less and less for it each year anyway.



There are two sums of money at issue
  • the amount spent on NHS England prescriptions for homeopathy - less than £100,000 (see blue graph below) for 6,821 prescription items (red graph below) in 2016
  • the amount spent on the wider infrastructure for homeopathy (staff, buildings etc) - apparently about £4m to £5m in 2016

In the mid-1990s the NHS in England spent upwards of £800,000 on homeopathy for 170,000 prescription items. This has dropped precipitously over the years, as you can see from the informative and entertaining graphs below.

Picture credit: Nightingale Collaboration, used with permish :)
Version for homeopathy fans
Well done! You began the year on 1 Jan 2016 with not a single homeopathy item prescribed but ended the year with a whopping increase to 6,281 items prescribed - an increase on a par with infinity.

Where was I...
I don't have the breakdown for the non-prescription costs, estimated to be several million at the moment. It's great that the prescription costs are dropping but we may still be wasting millions on this non-treatment on the NHS.


Although homeopathy wasn't mentioned in the first raft of 'things to consider banning' it will indeed be included in later considerations, according to Julie Wood's tweet below (she's the Chief Executive of NHS Clinical Commissioners).

https://twitter.com/NhsccJ/status/847794271512080386
"Homeopathy is in the overall £400m of spend identified - currently not in
first wave of 10 products for review but this is an ongoing project"

In other words, skeptics are pushing at an open door. We're not really trailblazing the decline of homeopathy on the NHS, it's happening anyway. Perhaps we've contributed to the changing mood though - for example newspaper reports now seem less likely to champion it and more likely to laugh at its improbability.

Unsurprisingly the magazine 'What Doctors Don't Tell You' (they don't like me much) have regurgitated the misinformation ("Homeopathy escapes the NHS cuts") and also managed to add in another error at the end ("The Swiss health authority has announced that homeopathy is effective enough to be included among therapies that can be claimed under health insurance plans..."). The Swiss have done no such thing and explicitly acknowledged that homeopathy was unable to provide evidence of efficacy. However, bafflingly, they are continuing to reimburse its use in health insurance but only if administered by a doctor, so there's that I suppose.



Background reading on NHS prescription costs
Every year the costs of prescriptions in England are published. Skeptics, being amused by the drop of homeopathy spending on the NHS have kept an eye on the cost for each year, going back to 1995 (info is publicly available).

Prescription Cost Analysis, England - 2016 [NS]
Publication date: March 30, 2017
Prescription Cost Analysis, England - 2016: Data Tables [.zip]
The [NS] means a publication that is within the scope of National Statistics, the lack of a [PAS] next to it means that no Press Announcement is Scheduled.
NHS Digital Publications calendar April 2016 - March 2017
NHS Digital Publications calendar (future)
 
Background reading on Swiss health authority and homeopathy
The Swiss rejected homeopathy as a 'treatment' that could be reimbursed in 2005 however lots of Swiss people voted for it in 2009 to be included, among some other ineffective treatments. The health authority requested evidence of effectiveness but eventually admitted defeat and surprised everyone in 2016 with this announcement:
"In a statement released on Tuesday, the interior ministry said it had come to the conclusion that it was “impossible to provide such proof for these disciplines in their entirety”.

They will thus be treated on a par with other medical disciplines, when it comes to health insurance.

The ministry plans to continue allowing reimbursements of treatment costs by compulsory health insurance, provided they are administered by certified medical doctors." 

Bad news for homeopathy fans though, it will continue to be scrutinised...




Saturday, 19 March 2016

The intersection of live blood analysis, pH quackery, cancer cures, fraud and criminal convictions

I've just been reading one of Orac's recent blog posts on the fate of American naturopath Robert O Young (ROY), currently awaiting trial for more charges of fraud relating to medical quackery.

Bad news continues to accumulate for “pH Miracle Living” quack Robert O. Young (16 March 2016) Respectful Insolence blog

Orac mentioned he'd been aware of ROY for about nine years and I realise I've probably been aware of him for a few years less, but still a good long time. He first came to my attention while a science information officer at Diabetes UK as someone who was making claims to cure diabetes (and all sorts of other conditions) by advising people to follow his pH miracle diet plan. We got a few enquiries from people wondering if it was something they should try and, having never heard of it, I investigated. I couldn't quite believe that his stuff had been printed and advised anyone who asked to (a) get proper advice from a doctor or proper dietitan and (b) to save their money on Young's books and related supplements.

He is probably the main proponent of the idea that the acidity ('pH') of your blood is related to your health. That in itself is uncontroversial - your body regulates blood pH extremely tightly and you'd be spectacularly ill if it wasn't able to. But eating particular foods doesn't make any difference to your blood's pH, in the same way that eating sugar or drinking water (both contain oxygen) don't help you breathe any better.

Live blood analysis (LBA) / nutritional microscopy

I've pinched the text below from ROY's Wikipedia page and pruned out some of the links and references -
"Young bases some of his theories, research, and written works on the alternative medical approach of live blood analysis. Young teaches microscopy courses in which he trains people to perform live blood analysis as well as dry blood analysis. Young has stated that he teaches live blood analysis solely for research and educational purposes, and not for use in diagnosing medical conditions, which the San Diego Union-Tribune characterizes as "a legal distinction that some might find elusive in practice".

Live blood analysis is used by alternative medical practitioners, who claim it to be a valuable qualitative assessment of a person's state of health. Live blood analysis lacks scientific foundation, and has been described as a fraudulent means of convincing patients to buy dietary supplements and as a medically useless "money-making scheme". Live blood analysis has been described by the U.S. Department of Health and Human Services as an "unestablished laboratory test", or test that is not generally accepted in laboratory medicine."
He's apparently taught live blood analysis to a number of people who've since tried to practice it in the UK, hopefully with decreasing success.

Live blood analysis is utter nonsense but we've recently had some success with (a) convictions (particularly in the UK relating to the Cancer Act 1939) and (b) regulatory action from the Advertising Standards Authority and the Committee for Advertising Practice who produced a specific guidance document relating to the way it's advertised to consumers.

The best bit about that document is that it's not permitted for someone to advertise that live blood analysis or nutritional microscopy can DO anything, they can only mention that they offer it without saying what it's for (it's not for anything).

"...CAP is yet to see any evidence for the efficacy of live blood analysis as a diagnostic tool or treatment therapy and so without rigorous evidence to support it, it should be advertised on an availability-only platform."

This is a very good thing, but we've not wiped LBA from the UK, but one can dream.




Further reading (and listening)

1. The recent regulatory action 
Harley Street practitioner claimed he could cure cancer and HIV with lifestyle changes and herbs, court hears The Telegraph (11 December 2013)

'Cancer cure' alternative health practitioner appears in court Trading Standards Institute news (~December 2013)
• "Westminster Trading Standards has instigated legal proceedings against an alternative health practitioner who uses a room in London’s Harley Street, for making various claims contrary to the Cancer Act 1939. "

2. Audio clips on some of the ASA's adjudications
Blood tests BBC You and Yours (11 March 2013)
• The ASA upholds more complaints against a man offering ‘live’ blood tests.

Live Blood Tests BBC You and Yours (15 March 2012)
• "Why adverts for a test which lets you see your own 'live' blood cells on a computer screen have been criticised for failing to prove claims they have the potential to prevent illness or disease."

3. The ASA adjudications against claims made about live blood testing
• ASA (24 April 2013) ASA adjudication on Live Blood Test
• ASA (27 February 2013) ASA adjudication on Live Blood Test
• ASA (6 March 2013) ASA adjudication on Steps to Perfect Health
• ASA (16 January 2013) ASA adjudication on the Natural Health Clinic 
• ASA (2 November 2011) ASA adjudication on Fitalifestyle Ltd: Fitalifestyle Ltd
• ASA (19 October 2011) ASA adjudication on Optimum Health UK
• ASA (7 September 2011) ASA adjudication on MyCityDeal Ltd: MyCityDeal Ltd t/a GrouponUK
• ASA (1 June 2011) ASA adjudication on Fitalifestyle Ltd t/a seemycells.co.uk
• ASA (13 October 2010) ASA adjudication on Live Blood Test

4. ASA Non-compliant online advertisers offering live blood analysis
ASA (12 March 2013) Live Blood Test - this person has since removed their misleading website claims and so has now been removed from the non-compliant list
ASA (15 February 2013) The Natural Health Clinic - this person has since complied too
ASA (26 June 2012) London Natural Therapies - this person has since complied too
ASA (15 November 2011) Fitalifestyle (claims about blood-cleaning properties of chlorophyll) - this person has since complied too

5. Background reading on live blood analysis as a bogus test
• Edzard Ernst (2005) A new era of scientific discovery? The Guardian
• Mark Crislip (2009) Live Blood Analysis: The modern auguries Science Based Medicine blog 
Wikipedia's article on Live blood analysis
• Thomas Patterson (2012) The Pseudoscience of Live Blood Cell Analysis Skeptical Inquirer
• Zachary Rubin (2009) Live Blood Analysis: New Diagnostic Method or Quackery? Case report and Review of the Literature UCLA Department of Medicine
Posts tagged with Live Blood Analysis on Josephine Jones' blog